Currently you can find lots of information on fibromyalgia. Just doing a quick search will bring up more sites than anyone can look at in a year. You can find out symptoms, medicines available, how it gets diagnosed, and lots more. There are lots of support groups online, books to read, special doctors, and other treatments that can help.
What you will not find is a cause, all kinds of possibilities, or any known cure. There is not a cure and no one knows for sure what causes it.
There are lots of other health issues that go with fibromyalgia. Depression, chronic fatigue, IBS, chronic pain, and so many more that it would be hard to mention everything on this article.
People with fibro have to deal with lots of doctors and can take years to be diagnosed. Then we have people who like to look at us and talk to us like we are hypochondriacs. Plus you have friends that love to tell you that you look great you must be feeling better, or that you do not look sick.
I do not want sympathy! I want people to try to understand what we go through. We are in pain all day and all night. We try every type of medicine and alternative treatments, but nothing works. It may work for a while but it does not last. We are super sensitive to medicines so we have to be careful with new medicines and watch the ones we have been on, we can have an allergic reactions at any time, for no reason.
I have days I could sleep 23 out of 24 hours, then I have days I am lucky to sleep 3 hours.
There is not one person with fibro that does not wish they could wake up and be back to “normal”. I used to love my job, was good at it, highly recommended by past employers, and now all my schooling and experience is wasted.
Some days I have fibro fog. It makes my thinking “blurry”. I cannot follow through and I try not to drive. I have been driving on the same road I have traveled for 14 years, now out of the blue I get lost on this same road. I pull over until I can remember. I love to read the sites where people talk about things they have done, that they laugh at now, but something no one would ever do. But at least we can laugh.
By the time I was diagnosed I was in the Physical Therapist office crying and thought I was having a nervous breakdown.
Fibromyalgia is not fun but it is real. I cannot wait until they find a test to prove what we have. We all have lives to live and we do the best we can. When we cancel please do not get mad, we would be there if we could. It is hard to make plans because we do not know how we will feel each day.
All I would like is if someone talks to you about a disease or illness that you do not know the facts on, please take time to learn about it before commenting or letting your opinion be known that may or may not be correct. It never hurts to be well-informed.
I am not in the healthcare industry so my opinions are my own.
Do you have an illness people do not understand? Please leave a comment letting me know how we can help or what people say to you that hurts!